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Dataset Directory
Data Source Guides

Dataset Directory: Directory Search

Find secondary data for your disability research. Search results include a link to a summary dataset description and a detailed full profile containing more details including a direct link to the dataset's primary website and documentation.

Full Text Search

Enter a term that describes the concept you are looking for. (Note: the term will be searched EXACTLY and may not find a dataset. Don't give up! Try the other interfaces, or contact our technical assistance for further suggestions)

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Filter by Criteria

Select one or more checkboxes and click the Submit button. All datasets that include any of the criteria will be displayed.

Continent/Region (7)

Description:

Africa
Asia
Central America & Caribbean
Europe
North America
Oceania
South America

Country (47)

Description: Country

Austria
Belgium
Bulgaria
Canada
China
Costa Rica
Croatia
Cyprus
Czech Republic
Denmark
El Salvador
England
Estonia
Finland
France
Germany
Ghana
Greece
Hungary
India
Indonesia
Ireland
Israel
Italy
Japan
Kenya
Korea
Latvia
Lithuania
Luxembourg
Malta
Mexico
Netherlands
Nicaragua
Philippines
Poland
Portugal
Romania
Russian Federation
Slovakia
Slovenia
South Africa
Spain
Sweden
Switzerland
UK
United States

Data Access (4)

Description: Availability/Limitations/requirements for accessing data.

Data Use agreement, $ Cost
Data Use agreement, No cost
Data archived on ADDEP
Public Use Dataset

Data Type(s) (3)

Description: Data based on Administrative or clinical records, or collected by survey.

Administrative
Clinical
Survey

Disability Measures (17)

Description: Type(s) of disability/impairment identified: (e.g., functional limitations, Activities of Daily Living (ADLs), etc.).

ACS 6 question disability series
Ambulatory disability
Cognitive disability
Communication impairment
Developmental disabilities
Functional limitations (ADLs and/or IADLs)
Hearing disability
Independent living disability
Intellectual disability
Mental health disability
Physical disability
Self-care disability
Special equipment use/assistive technology
Veteran service-related disability
Visual disability
Washington Group Questions on Disability
Work limitation

Health Conditions (40)

Description: Diagnosis or self report of specific health or medical condition. Please note - datasets with ICD-9/10 diagnostic codes may include any/all of the conditions listed.

ADD/ADHD
Allergies
Alzheimer's/dementia
Anxiety disorders
Arthritis
Autism spectrum disorders
Bipolar disorder
Blood disorder
Body mass index (BMI)/obesity
Burns
Cancer
Cardiovascular conditions
Cerebral palsy
Chronic pain
Congenital conditions
Depression
Diabetes
Down syndrome
Epilepsy or seizure disorder
Eye diseases
Heart attack
ICD-9/10 diagnostic codes
Infectious diseases
Kidney/renal condition
Migraine or frequent headaches
Missing limbs/hand/finger/feet
Multiple sclerosis
Muscular dystrophy
Neurological conditions
Orthopedic conditions
Osteoporosis
Parkinson's disease
Partial or total paralysis
Post traumatic stress disorder (PTSD)
Pulmonary disorders
Schizophrenia
Spinal cord injury (SCI)
Stroke
Thyroid disease
Traumatic brain injury (TBI)

Sample Population (4)

Description: The population from which the dataset sample is drawn.

Group Quarters
Hospitals and health care facilities/providers
Households
Medicare beneficiaries

Special Populations (3)

Description: Special Populations

Aging/Older people
Children/Youth
Medicare/Medicaid

Sponsoring Agency/Entity (10)

Description: Agency or entity responsible for dataset compilation.

Agency for Health care Research and Quality (AHRQ)
American Hospital Association (AHA)
Center for Medicare and Medicaid Services (CMS)
Centers for Disease Control and Prevention (CDC)
Dartmouth Institute for Health Policy and Clinical
Department of Health and Human Services (HHS)
Health Resources and Services Administration and Quality Resource System (QRS)
National Center for Health Statistics (NCHS)
National Institutes of Health (NIH)
U.S. Census Bureau

Study Design (2)

Description: Design of study: longitudinal (repeated observations over time), cross sectional (observation at a single point in time).

Cross-sectional
Longitudinal

Unit of Observation (4)

Description: The most basic unit on which data is collected on (e.g., individual, facility).

Geographic Area (e.g. County Level)
Hospital/facility
Individual/Patient
Service Provider/Agency

Browse Datasets

Click the "View Summary" link below a dataset to display the dataset summary and a link to the full profile. For multiple datasets, check the boxes by each one that interests you and click the Submit button located at the bottom of the list.

Centers for Disease Control and Prevention (CDC) (9 datasets)

Behavioral Risk Factor Surveillance System (BRFSS)
National Ambulatory Medical Care Survey (NAMCS)
National Death Index (NDI)
National Health Interview Survey (NHIS)
National Health and Nutrition Examination Survey (NHANES)
National Home Health and Hospice Care Survey (NHHCS)
National Nursing Home Survey (NNHS)
National Survey of Early Childhood Health (NSECH)
National Survey of Residential Care Facilities (NSRCF)

Department of Education (DOE) (2 datasets)

Case Service Report (RSA-911) (RSA-911)
National Longitudinal Transition Study 2 (NLTS-2)

Department of Health and Human Services (HHS) (45 datasets)

Area Health Resource File (AHRF)
Area Resource File (ARF)
Basic Stand Alone Durable Medical Equipment Line Items Public Use Files (BSA DME Line Items PUF)
Basic Stand Alone Home Health Agency Beneficiary Public Use Files (BSA HHA Beneficiary PUF)
Basic Stand Alone Skilled Nursing Facility Beneficiary Public Use Files (BSA SNF Beneficiary PUF)
Boston Rehabilitative Impairment Study of the Elderly (Boston RISE)
Burn Injury Model Systems (BMS)
Carrier (Fee-for-Service)
Consumer Assessment of Healthcare Providers and Systems (CAHPS) - Adult Hospital Survey (Adult HCAHPS)
Consumer Assessment of Healthcare Providers and Systems (CAHPS) - Child Hospital Survey (Child HCAHPS)
Durable Medical Equipment file (DME)
Health care Cost & Utilization Project (HCUP): Kids' Inpatient Database (KID) (HCUP-KID)
Health care Cost & Utilization Project (HCUP): Nationwide Inpatient Sample (NIS) (HCUP-NIS)
Health care Cost & Utilization Project (HCUP): State Inpatient Database (SID) (HCUP-SID)
Healthcare Cost Report Information System (HCRIS)
Home Health Compare (HHC)
Inpatient Rehabilitation Facilities Patient Assessment Instrument (IRF-PAI)
Inpatient Rehabilitation Facility Compare (IRF Compare)
Long-term Care Hospital Compare (LTCH)
Master Beneficiary Summary File (MBSF) Chronic Condition Segment (CCS) (MBSF-CCS)
Master Beneficiary Summary File (MBSF) Cost & Use Segment (CUS) (MBSF-CUS)
Master Beneficiary Summary File (MBSF) Other Chronic or Potentially Disabling Conditions segment (MBSF-OCPDC)
Master Beneficiary Summary File Base (A/B/C/D) (MBSF)
Medical Expenditure Panel Survey (MEPS)
Medicare Beneficiary Summary File
Medicare Cost Report Files
Medicare Current Beneficiary Survey (MCBS)
Medicare Health Outcomes Survey (HOS)
Medicare Health Outcomes Survey-Modified (HOS-M)
Medicare Provider Analysis and Review (MEDPAR)
Medicare-Medicaid Linked Enrollee Analytic Data Source (MMLEADS)
Minimum Data Set (MDS: v.3.0)
Nationwide Readmission Database (NRD)
Nursing Home Compare
Outcome and Assessment Information Set (OASIS)
Outpatient Standard Analytical Files (Outpatient SAF)
Provider of Services Files (POS)
Spinal Cord Injury Model System (SCIMS)
Spinal Cord Injury Rehab (SCIRehab)
Survey of Adult Transition and Health (SATH)
Swing Bed Assessment-Minimum Data Set (SB-MDS)
The National Survey of Children with Special Health Care Needs (NS-CSHCN)
The National Survey of Children's Health (NSCH)
Traumatic Brain Injury Model Systems National Database (TBIMS)
Young Children with Physical Disabilities, 2007 to 2012 [Seattle, Washington]

National Institutes of Health (NIH) (16 datasets)

Early Intervention Colorado (EI-CO) Participant Characteristics, Service Use, and Outcomes, Colorado, 2014-2016 (EI-CO)
Emergence and Evolution of Social Self-management of Parkinson's Disease
Established Populations for Epidemiologic Studies of the Elderly (EPESE)
Established Populations for Epidemiologic Studies of the Elderly - Piedmont Health Survey of the Elderly, Fourth In-Person Survey (Piedmont - EPESE)
Health and Retirement Study (HRS)
Hispanic Established Populations for Epidemiologic Studies of the Elderly (Hispanic - EPESE)
Language Development of Non-verbal Children Age 3 Years through 7 Years, 2007 to 2012 [Kansas City Metro Area]
Medical University of South Carolina Stroke Data (ARRA)
Mexican Health and Aging Study (MHAS)
National Health and Aging Trends Study (NHATS)
National Long-Term Care Survey (NLTCS)
Requests for Assistance with Adaptive Switches from Individuals with Severe Communication Impairments, 2007 to 2012
Stroke Recovery in Underserved Populations 2005-2006 (SRUP)
Survey of Pathways to Diagnosis and Services (Pathways)
Well Elderly 2, Los Angeles, California, 2004-2008
World Health Organization (WHO) Study on global Ageing and adult health (SAGE)

Other Source (22 datasets)

ACCESS Wheelchair Provision and Disability Inclusion Project, El Salvador, India, Kenya, Nicaragua, Romania, 2014-2017
American Hospital Association Annual Survey Database (AHA Annual Survey Database)
American Housing Survey (AHS)
Anatomical Tracings of Lesions after Stroke (ATLAS)
Canadian Longitudinal Study on Aging (CLSA)
English Longitudinal Study of Ageing (ELSA)
Functional Independence in Children at a Pediatric Clinic in Guanajuato, Mexico, 2004-2013
Hospital Service Area (HSA) and Hospital Referral Regions (HRR) (HSA & HRR)
Impact of WHO's 8-step Wheelchair Service Provision in Indonesia, 2013-2014 (WHO 8-Steps)
Interactive Autism Network (IAN)
Investigating the Neurobiologic Basis for Loss of Cortical Laterality in Chronic Stroke Patients, Charleston, South Carolina, 2014-2016
Japanese Study of Aging and Retirement (JSTAR)
Korean Longitudinal Study of Aging (KLoSA)
Longitudinal Aging Study in India (LASI)
PEDSnet (PEDSnet)
Panel Survey of Income Dynamics (PSID)
Retraining Walking Over Ground in a Powered Exoskeleton After Spinal Cord Injury
Stroke Initiative for Gait Data Evaluation (STRIDE)
Survey of Health, Ageing and Retirement in Europe (SHARE)
The Autism Treatment Network Registry (ATN)
Wheelchair Tiedown and Occupant Restraint System (WTORS) Activity in Paratransit Vehicles
Wheelchair Use and Services in Kenya and Philippines, 2014-2015

U.S. Census Bureau & Department of Labor (DOL) (6 datasets)

2014 Survey of Income and Program Participation (SIPP) SSA Supplement (SIPP SSA Supplement)
American Community Survey (ACS)
Current Population Survey (CPS)
Current Population Survey - Disability Supplement (CPS - Disability Supplement)
National Longitudinal Survey of Youth 1997 (NLSY97)
Survey of Income and Program Participation (SIPP)

Browse Repositories

Click the Submit button to view a listing of all the repositories.

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Contact Information

Northeast ADA Center
Yang-Tan Institute on Employment and Disability
Cornell University, ILR School
201 Dolgen Hall
Ithaca, NY 14853

Phone: 800-949-4232 (Voice, TTY & Spanish in New York, New Jersey, Puerto Rico and the US Virgin Islands)
In other areas: 607-255-6686 (Voice, TTY, Spanish)

Email: disabilitystatistics@cornell.edu

Accessibility Statement

About Us

The goal of the Northeast ADA Center is to educate and empower all ADA stakeholders throughout New York, New Jersey, Puerto Rico, and the US Virgin Islands to increase their knowledge of the ADA and to support them to include people with disabilities in local communities and to implement the ADA in their own lives, workplaces, businesses, and communities.

The Northeast ADA Center is a member of the ADA National Network funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant number 90DPAD0003). We provide information, guidance, and training on implementation of all aspects of the ADA. Our center is located at the Yang-Tan Institute at Cornell University’s ILR School. Our staff consists of individuals with and without disabilities who have extensive experience in the disability field.