|Dataset full name:
||Stroke Recovery in Underserved Populations 2005-2006
||The SRUP study is a longitudinal study of stroke patients admitted to inpatient rehabilitation facilities, designed to examine the effects and interactions of positive emotion and social networks in the motor and cognitive recovery of stroke patients in underserved groups. Data was collected at four points in time: at admission and discharge from the rehabilitation facility as well as follow-ups at 3 and 12 months post discharge.
The study was designed at the University of Texas Medical Branch. Inpatient and follow up data were collected by the IT Health Track.
||Stroke, Inpatient Rehabilitation Facilities, Functional Independence Measure, Positive affect, Health and Well-Being, Social Support, Underserved elderly, Ethnic minorities
||National Institutes of Health (NIH):
National Institute on Aging (NIA)
|Health conditions/Disability measures
||ICD-9 diagnostic codes, stroke, hemorrhagic stroke, ischemic stroke, other circulatory disease, hemiplegia, hemiparesis, paralysis, aphasia, dysphagia, neuromuscular symptoms.
||Functional Independence Measure (FIM), Duke-UNC Functional Social Support Questionnaire, Center for Epidemiological Studies-Depression (CES-D), PART-PROTM Home and Community Participation Measure.
||Measures/outcomes of interest
||Rehabilitation Outcomes in Stroke Patients, Mind-Body Health, Positive Attitude and Well-Being, Social, Motor and Cognitive Function, Functional Status Recovery, Social Networks Interactions, Functional Independence, Health Disparities in Underserved Populations, Stroke Comorbidities.
||Individuals with stroke admitted to 11 inpatient rehabilitation facilities in 9 different states in 2005-2006.
||1,219 cases,1,206 unique patients
|Unit of Observation
||Patient and case level
||11 inpatient rehabilitation facilities located in nine states: California, New Jersey, New York, Illinois, Iowa, Kentucky, Florida, Washington, and Texas
||Individual Inpatient Rehabilitation facility
|Data Collection Mode
||Admission and Discharge: In person assessment and interview during inpatient rehabilitation stay
Post discharge follow-up: telephone interview
|Data Collection Frequency
||Four time points of data collection:
Admission to rehabilitation facility
3 months Post discharge
12 months Post discharge.
|Strengths and limitations
||Use of ICD-9 diagnostic codes and of validated and reliable instruments. Large sample size; adequate to answer questions based on specific stroke characteristics. Functional, emotional and participation measures can be used as outcomes. Comparisons on outcomes can be assessed longitudinally. 85% of eligible respondents participated
|| Inpatient Rehabilitation facilities were not randomly chosen, limiting potential generalizability to national level. Underrepresentation of Hispanics limits generalizability to this ethnic group. Analysis on rehabilitation facility level may be problematic due to unbalanced sample sizes/small sample sizes. Stroke severity characterization unavailable
|Data Access Requirements
||Public Use Dataset
||ICPSR Variable list:
|Dataset components (where applicable)
||Berges, Ivonne-M., Kuo, Yong-Fang, Ottenbacher, Kenneth J., Seale, Gary S., Ostir, Glenn V. Recovery of functional status after stroke in a tri-ethnic population. PM&R. 4, (4), 290-295.
Berges, Ivonne-M., Seale, Gary S., Ostir, Glenn V. The role of positive affect on social participation following stroke. Disability and Rehabilitation. 34, (25), 2119-2123.