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Rehabilitation Dataset Directory: Dataset Profile


Dataset: The National Survey of Children's Health (NSCH)

Basic Information
Dataset full name: The National Survey of Children's Health
Dataset acronym NSCH
Summary The NSCH provides nationally representative information for children in ages from 0 -17 for all fifty states in the US, including District of Columbia and the US Virgin Islands. Besides providing information on prevalence of chronic conditions and special healthcare needs, this survey provides information on access to medical homes, parental health, family interactions, as well as neighborhood factors impacting children's health. Trends can be compared across the 3 waves of data collected.
Key Terms The NSCH provides nationally representative information for children in ages from 0 -17 for all fifty states in the US, including District of Columbia and the US Virgin Islands. Besides providing information on prevalence of chronic conditions and special healthcare needs, this survey provides information on access to medical homes, parental health, family interactions, as well as neighborhood factors impacting children's health. Trends can be compared across the 3 waves of data collected.
Study Design Cross-sectional
Data Type(s) Survey
Sponsoring Agency/Entity "Department of Health and Human Services (HHS): Maternal and Child Health Bureau (MCHB)"
Health conditions/Disability measures
Health condition(s) ADD/ADHD, Depression, Anxiety problems , Behavioral or conduct problems , Autism, Asperger’s Disorder, Pervasive developmental disorder, or other autism spectrum disorder , Developmental delay , Intellectual disability or mental retardation, Asthma, Diabetes, Epilepsy or seizure disorder, Migraine or frequent headaches, Head injury, Heart problem, Blood problems, Cystic Fibrosis, Cerebral Palsy, Muscular Dystrophy, Down Syndrome, Arthritis/ joint problems, Allergies
Disability Measures Visual disability, Hearing disability, cognitive impairment, communication impairment, Activity & Functional limitations, Participation restrictions, Mobility aids
Measures/outcomes of interest
Topics Prevalence of Special Health Care Needs and Chronic Conditions among children in each of the fifty states, including District of Columbia and the US Virgin Islands, Health insurance coverage, Healthcare access and utilization, Access to medical homes and usual source of care, Early, middle and late childhood screening for chronic conditions, Family functioning and socio-economic status including parental health and health behaviors, Neighborhood resources for healthy living
Sample
Sample Population Children ages 0-17
Sample Size/Notes 91, 800 child-level interviews conducted during 2011-12; with a minimum of 1800 interviews conducted for EACH state, District of Columbia and the US Virgin Islands
Unit of Observation Individual
Geographic Coverage National
Geographic specificity State
Data Collection
Data Collection Mode Survey
Years Collected 2003, 2007, 2011-2012
Data Collection Frequency Every 4 years
Strengths and limitations
Strengths Large sample size - adequate to perform state level analysis. Wide variety of health and disability measures including activity and functional limitations and participation restrictions as well as medical conditions and impairments. Comparisons can be made between the 3 waves of surveys. Information available on neighborhood factors as well as parental and family functioning impacting children's health and well-being. Well documented measures and data.
Limitations A number of the survey’s questions were revised or reordered, and some of the indicators have been re-defined, so some of the indicators cannot be compared between survey waves (see: http://childhealthdata.org/learn/methods#AcrossYears )
Data details
Primary Website http://childhealthdata.org/learn/NSCH
Data Access http://www.cdc.gov/nchs/slaits/cshcn.htm
Data Access Requirements Public Use Dataset
Summary Tables/reports http://childhealthdata.org/browse/trends
Dataset components (where applicable) Interview file (n = 91,800) detailed NSCH interview data for sample child and household
Selected papers
Technical Interview file (n = 91,800) detailed NSCH interview data for sample child and household
Other Papers Blumberg SJ, Foster EB, Frasier AM, et al. Design and operation of the National Survey of Children’s Health, 2007. National Center for Health Statistics. Vital Health Stat 1(55). 2012.



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The Rehabilitation Research Cross-dataset Variable Catalog has been developed through the Center for Large Data Research & Data Sharing in Rehabilitation (CLDR). The Center for Large Data Research and Data Sharing in Rehabilitation involves a consortium of investigators from the University of Texas Medical Branch, Cornell University's Yang Tan Institute (YTI), and the University of Michigan. The CLDR is funded by NIH - National Institute of Child Health and Human Development, through the National Center for Medical Rehabilitation Research, the National Institute for Neurological Disorders and Stroke, and the National Institute of Biomedical Imaging and Bioengineering. (P2CHD065702).

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